Tuesday, September 30, 2014
Thursday, September 25, 2014
Emojo's
Being sick can cause a whole range of emotion's. Often MS is linked with depression. Which I believe people can overcome. But sometimes it could just take one small thing to trigger those emotions to come flooding back. You have to control how you respond towards situations and people, if your like me sometimes you don't care. And negative influences, people, unresolved situations feed off that drama. It's often part of "leave the past in the past", but what if it hurts your future. I'm learning to let go and let God handle that situation.
Truthfully, I still don't know what to do when it comes peeping around the corner. All I know is to cut the snake head off. Cut off anything linked to it. We often hang on to past situations instead of learning from them causing us to hurt. So instead of trying to do it all at once, I work on things in pieces. Stop watching other people, you only get mad at where you are in life. Hold on to your belief cause that may be all you have to stand on even when no one believes in you. It may hurt, but going along with the popular demand would do you an injustice. Whether we are sick or not we still have things to work on.
As a MS'er we already have a lot on our plate, especially if your rebounding and trying to make it back up. Concentrate on your health because without that we can do nothing. Healthy mind, healthy body, and healthy spirit they all link together so get to it and work.
Truthfully, I still don't know what to do when it comes peeping around the corner. All I know is to cut the snake head off. Cut off anything linked to it. We often hang on to past situations instead of learning from them causing us to hurt. So instead of trying to do it all at once, I work on things in pieces. Stop watching other people, you only get mad at where you are in life. Hold on to your belief cause that may be all you have to stand on even when no one believes in you. It may hurt, but going along with the popular demand would do you an injustice. Whether we are sick or not we still have things to work on.
As a MS'er we already have a lot on our plate, especially if your rebounding and trying to make it back up. Concentrate on your health because without that we can do nothing. Healthy mind, healthy body, and healthy spirit they all link together so get to it and work.
Monday, September 22, 2014
http://www.emaxhealth.com/1275/multiple-sclerosis-drug-trials-reduces-relapse
Multiple Sclerosis Drug in Trials Reduces Relapse
2014-09-22 10:12
A potential new multiple sclerosis drug has been shown to significantly reduce relapse rate. In addition, results of the six-month Phase 2 trial also indicated two other important findings.
The new multiple sclerosis drug, which is named RPC1063, not only reduced the annualized relapse rate among the study participants; it also was associated with a major decline in the development of new brain damage and caused nearly no one to drop out of the study because of side effects.
The research team included scientists from various Scripps Research locations in the United States. A total of 258 individuals with relapsing-remitting multiple sclerosis participated in the trial. Here’s a brief summary of their findings:
What else may reduce relapses?
Another recent study found that a type of estrogen called estriol could reduce the relapse rate in women with multiple sclerosis. In the study, the patients were also taking Copaxone (glatiramer) and the benefit was observed after one year of treatment with both the drug and hormone.
These results were reported from a Phase 2 clinical trial, and therefore more research is needed before this combination of treatments may be used to lower relapse rates. Given that a female hormone was used in the study, no males were involved.
In addition to a reduction in the relapse rate, the women in the study who took the combination treatment also showed higher scores on cognitive functioning tests. This is not surprising since previous research has shown that estrogen can help protect the female brain from cognitive challenges such as memory loss and other mental dysfunctions.
Among the MS treatments already approved by the Food and Drug Administration (FDA) and that may reduce the relapse rate is Tecfidera (dimethyl fumarate). In the natural medicine category, a combination of vitamins A and E along with omega-3 and omega-6 fatty acids has been shown to be somewhat effective in lowering the rate of relapse.
Although there is yet no cure for multiple sclerosis, a variety of both conventional and alternative and complementary treatments are available that may reduce relapse rates, mitigate symptoms, and slow progression of the disease. Keeping up with all of the options can be challenging, yet the good news is that the search continues.
SOURCE:
Scripps Research Institute
The research team included scientists from various Scripps Research locations in the United States. A total of 258 individuals with relapsing-remitting multiple sclerosis participated in the trial. Here’s a brief summary of their findings:
- Compared with placebo, use of the new multiple sclerosis drug resulted in up to a 53 percent decline in the annualized relapse rate
- Use of RPC1063 resulted in a decline in the development of new brain damage (as noted using magnetic resonance imaging) by more than 90 percent
- More than 98 percent of the participants who took the drug did not stop because of adverse responses to the medication. This is a significant finding because many drugs for multiple sclerosis are associated with significant side effects.
What else may reduce relapses?
Another recent study found that a type of estrogen called estriol could reduce the relapse rate in women with multiple sclerosis. In the study, the patients were also taking Copaxone (glatiramer) and the benefit was observed after one year of treatment with both the drug and hormone.
These results were reported from a Phase 2 clinical trial, and therefore more research is needed before this combination of treatments may be used to lower relapse rates. Given that a female hormone was used in the study, no males were involved.
In addition to a reduction in the relapse rate, the women in the study who took the combination treatment also showed higher scores on cognitive functioning tests. This is not surprising since previous research has shown that estrogen can help protect the female brain from cognitive challenges such as memory loss and other mental dysfunctions.
Among the MS treatments already approved by the Food and Drug Administration (FDA) and that may reduce the relapse rate is Tecfidera (dimethyl fumarate). In the natural medicine category, a combination of vitamins A and E along with omega-3 and omega-6 fatty acids has been shown to be somewhat effective in lowering the rate of relapse.
Although there is yet no cure for multiple sclerosis, a variety of both conventional and alternative and complementary treatments are available that may reduce relapse rates, mitigate symptoms, and slow progression of the disease. Keeping up with all of the options can be challenging, yet the good news is that the search continues.
SOURCE:
Scripps Research Institute
Always be willing to adapt to change and aspire to do more. Getting some drastically life changing news can have you lost. The biggest key to the component is to be willing to try understand what is attacking you. You don't have to understand why all the time, but being able to identify the situation is where people miss their chance to overcome and move forward.
Okay, so you got a curve ball thrown and it hits you. Yeah, it hurts and may have left a bruise. It doesn't give you a right to give up the whole game. That bruise may serve as a reminder, you went through something and you overcame it. Dreams are often detoured,and delayed, but don't just throw them away. Adapt to where you are at in life now and make those changes, embrace them for it will be so much easier. It's so easy to say but it is a battle within yourself if your trying to become a better person. Throw out all the former plans and maybe some people that may be hindering you. Let go of the past mistakes, because they can be draining. Let go of the old you because no matter how much you want to return to that person, it is done and has served it's purpose in your life. Our shortcomings, life changing disaster's all serve a purpose wither you like it or not. If you are like I personally do disagree with all these changes, but God has designed me for a purpose.
If you believe in God like I do, he specializes in radical changes in your life. Once bed bound and wheelchair ridden I didn't know if I could make any changes. I just knew I didn't want to be stuck where I was at. I began to let it go, the anger, frustration, carrying the old pains, old scars that happened so long ago. After all that I began to see my body heal, the doctor's they continue to give me bad news, and I do everything they say. But for every bad report God's works something out for me. I began pushing and he began leading. I now am starting to walk with no cane, made all the necessary changes and advocating for myself. Who is going to care for you, if your not trying to do it for yourself. We can't do it on our own, but you have to have the drive and determination to move on
Okay, so you got a curve ball thrown and it hits you. Yeah, it hurts and may have left a bruise. It doesn't give you a right to give up the whole game. That bruise may serve as a reminder, you went through something and you overcame it. Dreams are often detoured,and delayed, but don't just throw them away. Adapt to where you are at in life now and make those changes, embrace them for it will be so much easier. It's so easy to say but it is a battle within yourself if your trying to become a better person. Throw out all the former plans and maybe some people that may be hindering you. Let go of the past mistakes, because they can be draining. Let go of the old you because no matter how much you want to return to that person, it is done and has served it's purpose in your life. Our shortcomings, life changing disaster's all serve a purpose wither you like it or not. If you are like I personally do disagree with all these changes, but God has designed me for a purpose.
If you believe in God like I do, he specializes in radical changes in your life. Once bed bound and wheelchair ridden I didn't know if I could make any changes. I just knew I didn't want to be stuck where I was at. I began to let it go, the anger, frustration, carrying the old pains, old scars that happened so long ago. After all that I began to see my body heal, the doctor's they continue to give me bad news, and I do everything they say. But for every bad report God's works something out for me. I began pushing and he began leading. I now am starting to walk with no cane, made all the necessary changes and advocating for myself. Who is going to care for you, if your not trying to do it for yourself. We can't do it on our own, but you have to have the drive and determination to move on
Friday, September 19, 2014
Tear's sown into your garden
There are going to be times when people don't understand the tears that run down your eye's. You won't be able to help it, your heart just hurts so much. Other's will not understand it, they'll tell your oh why don't you just get over it by now. I say cry anyway, cry in you closet, you private place, in church, with a friend. Cry till you feel like it is time to stop crying, don't get me wrong I'm not saying be stagnant. Don't stay still by no means because how are you going to get over it. Find the root that is within the weeping willow, embrace it, own up to, and do what you have to do on your own terms. Cry baby cry, cry baby cry! It's your soul that needs the healing, not the people around you. Don't pay attention to what is going on around because life to everyone else just goes on. Your road block in your life is just temporary and the tears that are sown are for your beautiful garden that is growing within you.~ KH
Thursday, September 18, 2014
Looking back at how it all began.....
I been praying and praying about the things happening in my life. Confession, this is a hard thing to go through for me, I'm not use to being pushed out my comfort zone. When you have a drastic shift in your life it affects everything to the core. You mental wellbeing, finances, relationship's. I think the biggest part for me was getting over the emotional ties with people, the lie's and rumors hurt my heart. It stressed me out so bad it brought out my first full fledged relapse as a adult. I remember having one going into my senior year of high school, but no one notice my true problem and I was misdiagnosed. I was having so much difficulty walking that I stayed in bed all the time and had gotten open sore's all over my body.
But the relapse that changed my life, lasted for over a year and I'm just beginning to get better. The stress of my job and deceiving relationship's with people close to me starting bringing out changes in me physically because I wouldn't deal with them emotionally. I began working out more, partying more, drinking even way to much for the average man. I was so unsober about what I was going through I didn't realize the changes in body until it was to late. I remember in May 2012 I was attacked and no one would help me. Being so stressed out about the situation my vision began to change and I was consistently hearing ringing or buzzing. Then my body started acting funny I would be awake on time for work, but couldn't move no part of my body. Try explain that to your supervisor when other doctors kept saying nothing was wrong. Between that and passing out, I put my job at risk and could no longer fight to keep it. Still having those symptoms, more began to happen.
Unable to come up with answer's for over a year now, I clinged to one of the most unhealthy relationships I ever had. Why I held on to that man I don't know why. But he was taking care of me, and abusing me at the same time. I won't get graphic because I'm still ashamed I ever met him. I got worse and worse, went from doctor to doctor still being misdiagnosed. My boyfriend at the time had to put me in the tub, pull me out, help me down the stairs to get in my car so I could go to work. Crazy! I was still trying to drive and work. I was falling so much coming into the building that one coworker would wait for me walk me in and out. When I think about it I can't help but cry. Misdiagnosed with edema twice, I finally passed out in a room full of people at work. Stayed in the ER for three days because they noticed I couldn't walk. Just by chance before they was going to discharged me, a new shift began and that on call physician asked to do a MRI. My brain was lit up like a Christmas tree. That's the beginning of my story.
But the relapse that changed my life, lasted for over a year and I'm just beginning to get better. The stress of my job and deceiving relationship's with people close to me starting bringing out changes in me physically because I wouldn't deal with them emotionally. I began working out more, partying more, drinking even way to much for the average man. I was so unsober about what I was going through I didn't realize the changes in body until it was to late. I remember in May 2012 I was attacked and no one would help me. Being so stressed out about the situation my vision began to change and I was consistently hearing ringing or buzzing. Then my body started acting funny I would be awake on time for work, but couldn't move no part of my body. Try explain that to your supervisor when other doctors kept saying nothing was wrong. Between that and passing out, I put my job at risk and could no longer fight to keep it. Still having those symptoms, more began to happen.
Unable to come up with answer's for over a year now, I clinged to one of the most unhealthy relationships I ever had. Why I held on to that man I don't know why. But he was taking care of me, and abusing me at the same time. I won't get graphic because I'm still ashamed I ever met him. I got worse and worse, went from doctor to doctor still being misdiagnosed. My boyfriend at the time had to put me in the tub, pull me out, help me down the stairs to get in my car so I could go to work. Crazy! I was still trying to drive and work. I was falling so much coming into the building that one coworker would wait for me walk me in and out. When I think about it I can't help but cry. Misdiagnosed with edema twice, I finally passed out in a room full of people at work. Stayed in the ER for three days because they noticed I couldn't walk. Just by chance before they was going to discharged me, a new shift began and that on call physician asked to do a MRI. My brain was lit up like a Christmas tree. That's the beginning of my story.
Wednesday, September 17, 2014
Tuesday, September 16, 2014
So it's been a while since I posted I kinda got discouraged because things haven't been moving as fast and smoothly as I wanted. But I guess that is a lesson in itself. For nearly two months there had been a hold up in receiving the rituximab infusions but last Thursday I received my first infusion just to see how it react in my system. So far everything is a green light but it truly takes about 96 days for it to show some results. There are still so many questions that I have, and I'm scared of the answer may be. I'm thirty- two never have had kid's before, what are my chance's now? How long will I have to take this medication? What are the long-term effects, because I can always over look the immediate as long as the benefit outweighs the side effects.
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