So today is day five since I been off my Avonex and I do realize some problems but I'm still blessed for being here. I'm a little forgetful and my thinking is clouded. I have prepared a "just in case bag" and sat it below the counter. There is so much on my I don't know what to say this evening. For as talkative as I am, I'm nervous and have another brain fart. Maybe I should start by talking about the situation at hand of how I got here.
I started out on steroid's and that was definitely something that couldn't be a permanent solution, but it work wonderfully to me. It stop most of my symptoms and I was walking just fine. Coming off it felt like coming off crack or something. It wouldn't matter if you were put on it one time it felt horrible coming off. It took months to actually see a specialist and be put on Tysabri but having the JC virus put me at risk for being PML, which would leave me permanently disable. That possibility mortifies me, honestly I rather be dead than not to able to wipe myself or to move my arms. But at times my hands shake and I can barely grip now. I hide from people as much as possible. A couple months ago I was put on Avonex and it seem to be doing well, except I kept having migraines. Four months later, three eye doctor and a MRI showed finally that I was getting worse once I gotten off the Tysabri treatments. The Avonex wasn't working.
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